display:none
Skip to main content

Measures that matter to ADRD patients and their caregivers

95 %
individuals with ADRD are managing chronic comorbidities
16 million
family members and friends serving as caregivers

Alzheimer’s disease and related dementias (ADRD) affect 47 million people worldwide—a number expected to double every 20 years. Yet, research lacks diversity, especially for underrepresented populations, creating gaps in understanding how different communities experience ADRD and respond to treatments.

The core set of digital measures of ADRD provide you with metrics that connect technology to the real experiences of patients and their care partners based on DATAcc’s survey of the global ADRD community. Use these resources to enhance your trial process, ensure consistent data across studies, support diverse recruitment, and enable real-time insights for earlier, data-driven decisions.

Discover how researchers are using these resources

    Project partners and digital solutions collaborators

    Partners

    Also funded by

    Digital solution collaborators

    In the news

    Advancing Digital Approaches in Alzheimer’s Research and Care ft. Sarah Averill Lott, DiMe and Diane Stephenson, Critical Path for Parkinson

    July 10, 2025

    New tools for Parkinson’s added to Digital Medicine Society library

    July 25, 2024

    Digital Health Technologies for Alzheimer’s Disease and Related Dementias: Initial Results from a Landscape Analysis and Community Collaborative Effort

    June 10, 2024

    No Moonshots With Paper Planes: Alzheimer’s Trials Need Neurotech

    January 30, 2024

    Harnessing Digital Health to Accelerate Progress Against Alzheimer’s

    January 4, 2023

    Drugmakers unite to set digital standards for Alzheimer’s disease studies

    March 14, 2022
      Join our next project

      Help streamline the path to regulatory and commercial success to optimize health outcomes for the greatest number of patients

      Join the Integrated Evidence Plans project

      Join us
      Not today